Open Letter to a Mom Parenting a Child with Albinism from a College Student living with Ocular Albinism

Mack DespardAlbinismLeave a Comment

This open letter is my response to an article written by Lee Kofman and published on Mamamia.com. Dear Dr. Kofman, I was pleasantly surprised to come across your recent post about parenting your son who has albinism. In my opinion, there aren’t enough people like you sharing these stories which help to enlighten the community. Allow me to introduce myself. My name is Mack, I am 20 years old, and live in North Carolina, United

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Life-changing

Henry Greene, OD, FAAOAlbinism, Success Stories

My name is Alyssa. I am 22 years old, and I was born with a genetic condition known as Albinism. This genetic disorder usually causes a lack of pigmentation in the skin, hair, and eyes and is always linked with some degree of visual impairment. I have one of the more severe cases making my uncorrected vision 20/400. This is well beyond the threshold that is considered legally blind which is 20/200. Ocutech, a company

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Living Life Karina Fuentes Style: There is Always A Way of Helping.

Sarah LovejoyAlbinism, Nystagmus, Success StoriesLeave a Comment

Karina Fuentes wearing bioptics and working on a computer

After migrating to the United States, Karina was an intern for the Braille Institute of America. Currently, she works as a full-time receptionist and uses her bioptic daily for clerical tasks that require a significant amount of reading. Karina prefers her Ocutech bioptics over other devices such as hand-held magnifiers because of the versatility and efficiency that comes with the ability to seamlessly move between viewing an object up-close and at a distance, such as reading a book and then looking up at a computer screen.

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